Ashleigh has been doing ok. Uneventful last few days. They are thinking about extabating(remove the ventilator tube) her soon. The doctors want to fatten her up a little bit and then give her a couple of doses of steroids to relieve any inflamation in her airway before they try. They do not know exactly when, but it is nice to know they are at least thinking about it. Ashleigh weighs 2lbs 13oz.
Faith seems to be improving. She opened her eyes for daddy and is moving purposefully. She has lost a lot of her puffiness. Things seem to be moving in the right direction. Faith weighs 2 lbs 5oz.
Once again thanks for all the thoughts and prayers
Todd and Michelle
Saturday, August 16, 2008
Thursday, August 14, 2008
Update Thursday Aug 14th
They took Faith off the oscillating ventilator yesterday and put her on a standard ventilator. This allowed them to also do an EEG to check her brain function. We received some good news this evening. The initial results were good. They will not have the full report for a few days so we will hold of celebrating until the final report is in. She has been doing ok with most of her vitals, has been peeing, and has not shown any signs of seizures. In the next couple of days the doctors plan on doing another heart echocardiogram with her blood pressure lowered to look for any more defects that don't readily appear when her bp is higher. They are still trying to find out why her breathing and kidney function are not improving.
Ashleigh has had a couple of relatively uneventful days. Mom held her again and she did very well. She's eating and her vitals have been good.
Ashleigh has had a couple of relatively uneventful days. Mom held her again and she did very well. She's eating and her vitals have been good.
Tuesday, August 12, 2008
To Cooper's Family
Our sincerest condolences to Cooper's family. Cooper was Faith's isolette neighbor.
You are in our thoughts and prayers.
God Bless
Michelle and Todd
You are in our thoughts and prayers.
God Bless
Michelle and Todd
Tuesday Aug 12th
Faith's seizures have been controlled by the Phenylbarbital(PB). They have not observed any seizures in the last day or so. The doctors still do not know why they developed and they may never know. We will have to wait until she starts outgrowing her PB dose to determine if the antibiotics have cured the underlying problem.
Early this morning they tried to ween her off some of her blood pressure drugs, but her BP went too low and her urine output decrease some. They have since increased them to the previous level. She has had her O2 levels drop a few times today so they had to increase her ventilator settings to help her breath. Comparative to the weekend she has had a relatively good day and a half. She has atleast been getting more rest then she was.
Ashleigh pulled her intubation tube out last night for the second time(stinker!). They tried to leave her on the CPAP(nasal ventilator) to see if she could handle it. She wasn't ready so they reintibated her. While she was on the CPAP we did get to hear her cry. I was never so happy to hear a baby cry. In the grand scheme she is doing well.
Early this morning they tried to ween her off some of her blood pressure drugs, but her BP went too low and her urine output decrease some. They have since increased them to the previous level. She has had her O2 levels drop a few times today so they had to increase her ventilator settings to help her breath. Comparative to the weekend she has had a relatively good day and a half. She has atleast been getting more rest then she was.
Ashleigh pulled her intubation tube out last night for the second time(stinker!). They tried to leave her on the CPAP(nasal ventilator) to see if she could handle it. She wasn't ready so they reintibated her. While she was on the CPAP we did get to hear her cry. I was never so happy to hear a baby cry. In the grand scheme she is doing well.
Sunday, August 10, 2008
Sunday August 10th
Faith has not been doing well. We arrived Saturday afternoon and witnessed the seizures that the doctor called us about. They are very unsettling to see. The frequency and duration got worse as the evening progressed. At one point I would say she was seizing every minute. Once they gave her the second dose of phenylbarbital they reduced in frequency and duration. Faith was a little better in the early morning hours. We are unfortunately in a waiting game until they can figure out what is causing them
We did not get an opportunity to see Asheigh, but the nurse said she pooped a ton. They really do excited about pooping in the NICU! She had a good day yesterday.
We did not get an opportunity to see Asheigh, but the nurse said she pooped a ton. They really do excited about pooping in the NICU! She had a good day yesterday.
Saturday, August 9, 2008
Update Saturday Morning
Faith had a good day on Friday, her urine output was up and she lost a lot of her puffiness. She had a negative blood culture and seemed very content and relaxed. This morning we were informed she is having seizures. They are treating her with phenylbarbital to halt them while they try to determine why. When she is stable enough they plan to do a spinal tap to see if she has meningitis. They also cannot put her on an EEG until she is off the oscillating ventilator as it interferes with the EEG. So she is sticking to her good day-bad day routine.
On a better note. We have both held Ashleigh. She really liked being held by mom. Her oxygen saturation jumped up to 100% and she was very content for over an hour. Momma was very proud. We have video we will post soon. Ashleigh is 2lb 9oz and has been feeding very well. Over all she seems to be doing well. We just need her sister to do the same.
On a better note. We have both held Ashleigh. She really liked being held by mom. Her oxygen saturation jumped up to 100% and she was very content for over an hour. Momma was very proud. We have video we will post soon. Ashleigh is 2lb 9oz and has been feeding very well. Over all she seems to be doing well. We just need her sister to do the same.
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