We have had a rough few days. We were informed late Monday evening that Faith needed surgery to close the Patent Ductus Arteriosus. The echocardiogram showed the ductus was very large and they believed it was likely the cause of most of her breathing and kidney issues. The surgery was performed on Tuesday morning and by all accounts went very well. We were even shown video of the procedure. Faith was doing very well afterwards when we left on Tuesday evening. Unfortunately some thing changed and we were called early Wednesday morning with the news she was not doing as well. Her blood pressure was low, her heart rate was high, and she was not urinating. She continued this way throughout the day yesterday. This seemed to be puzzling the doctors and they were very concerend. They put her on a multitude of medications and fluids to get her to pee and bring up her bp. Overnight she has improved a little on her bp and she peed a small amount. We are hoping the steroid they gave her will help turn her in the right direction today.
Ashleigh has been doing well over the last few days , although we have not spent as much time with her. She even pooped. Pooping is exciting for a premie. She is up to 2.2lbs and her infection seems to be under control.
Thursday, July 31, 2008
Sunday, July 27, 2008
Update July 27th
Ashleigh took a step backwards yesterday. They had to intibate her again to support here breathing. She likely has an infection, but the labs will not be back to tomorrow to determine what kind. They have also stopped feeding her breast milk and have gone back to the IV. Otherwise she is stable
Faith's murmur is smaller but it still exists. They are going to perform an ECG today to take a look. We do not know at this point if they will need to perform any other procedures or give her any medications. She too is stable and has gained some weight over the past few days.
Todd
Faith's murmur is smaller but it still exists. They are going to perform an ECG today to take a look. We do not know at this point if they will need to perform any other procedures or give her any medications. She too is stable and has gained some weight over the past few days.
Todd
Thursday, July 24, 2008
July 24th Update
We received some better news today as Faith's murmur could not be heard by the doctor. It seems the Ibuprofen treatment is working. So hopefully surgery will not be needed. She also gained 30 grams.
Ashleigh's echocariogram showed she does not have the Patent Ductus Arteriosus like Faith. She does have a small opening they expect to close on its own. No IB treatments are needed for Ashleigh.
The doctors expect to have both girls eating breast milk again in the next day or so.
We just need to get rid of our colds so we can go see them.
Ashleigh's echocariogram showed she does not have the Patent Ductus Arteriosus like Faith. She does have a small opening they expect to close on its own. No IB treatments are needed for Ashleigh.
The doctors expect to have both girls eating breast milk again in the next day or so.
We just need to get rid of our colds so we can go see them.
Wednesday, July 23, 2008
July 23rd Update
The girls have been hanging in there. Both are relatively stable and have had some good and some less then good days. Each has been on and off the ventilators and feeding on their own from time to time. One of the struggles we have had is that both mom and dad have been sick with a cold. I have not been able to see them since Thursday the 17th and Michelle hasn't seen them since Saturday. This has been very hard on both of us.
Faith is a battler and likely going to be the trouble maker when she grows up. She has a few issues the doctors are keeping an eye on including some Renal(Kidney) issues. We were informed yesterday that she has a heart murmur or more technically Patent Ductus Arteriosis. The doctors believe this is what is keeping her from improving her breathing. They are treating her with Ibuprofen which helps close the Ductus Arteriosis. If the IB treatments do not work she will likely need surgery to close the Ductus.
Ashleigh has been more stable, but they had to put her in isolation as a nose swab tested positive for MRSA(penicillin resistant Staph). She does not have an active infection, but was isolated to protect the other children. We were also informed today that she too may have a heart murmur and they will likely begin the IB treatment to close the ductus.
We would like to thank everyones support and prayers. We will try to keep everyone up to date on their progress. Please feel free to check back often for updates including pictures and videos.
Todd
Faith is a battler and likely going to be the trouble maker when she grows up. She has a few issues the doctors are keeping an eye on including some Renal(Kidney) issues. We were informed yesterday that she has a heart murmur or more technically Patent Ductus Arteriosis. The doctors believe this is what is keeping her from improving her breathing. They are treating her with Ibuprofen which helps close the Ductus Arteriosis. If the IB treatments do not work she will likely need surgery to close the Ductus.
Ashleigh has been more stable, but they had to put her in isolation as a nose swab tested positive for MRSA(penicillin resistant Staph). She does not have an active infection, but was isolated to protect the other children. We were also informed today that she too may have a heart murmur and they will likely begin the IB treatment to close the ductus.
We would like to thank everyones support and prayers. We will try to keep everyone up to date on their progress. Please feel free to check back often for updates including pictures and videos.
Todd
Friday, July 11, 2008
The Twins Arrive!
Although we would have like to seen them for the first time in September or October, the girls are here. They a very precious. They both have black hair and mom's nose.
Ashleigh Ruth born @10:46 am - 1 pound 13 ounces - 13.25 inches
Faith Michelle @10:48 am - 1 pound 3 ounces- 11.25 inches
Amazingly Faith was breathing on her own after birth and daddy even heard a small cry.
Ashleigh Ruth born @10:46 am - 1 pound 13 ounces - 13.25 inches
Faith Michelle @10:48 am - 1 pound 3 ounces- 11.25 inches
Amazingly Faith was breathing on her own after birth and daddy even heard a small cry.
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