Wednesday, September 3, 2008

Update Wednesday Sept 3rd

Ashleigh is getting big. She is now 4lb 1oz. The doctor actually started talking about her going home in the not to distant future. She needs to improve her breathing, hold her own temp and feed from a bottle. There is still a long road ahead and we have watched several babies stay after they were supposed to go home. So we won't get excited until we are home with her. The opthamologist told us she shows signs of ROP(retinopathy of prematurity). He believes it will resolve on its own. If not she may require eye surgery to fix the issue. I will attach a link to describe the condition. Ashleigh smiled quite a bit yesterday.

Faith has been eating breast milk and growing, but some of it seems to be fluid retention. They had to give her albumen again to help pull the fluid out of her tissues and into the blood. The doctor believes her kidneys are not functioning correctly and leaking her own albumen. He informed us her kidneys will likely not improve and may require dialysis and eventual transplant. Nephrology will need to come look at her at some point as he is not the kidney expert. Her ventilator settings are still pretty high, but they have been able to reduce them some. She seems to be getting more rest. They have taken her off most of the meds, except for the anti seizure drugs. They are going to let her outgrow the doses of those drugs. We will know if she is still having seizure activity as she continues to grow. It is very difficult seeing her pace of improvement to be so much less then Ashleigh's. Faith has her name for a reason.

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