Update Friday Sept 12th

We met with the nephrologist today to talk about Faith's kidney issues. As we had expected and been previously told, her kidneys will not improve. They were damaged by the twin to twin transfusion syndrome. The doctors said she will require dialysis and a kidney transplant at some point in the future. He was thinking somewhere around one year old at the earliest.

Our meeting with the nephrologist was precipitated because Faith's labs started showing significant changes in Kidney function. This concerned the doctors. They believe these deteriorations in kidney function were related to her infection. The nephrologist said she has chronic renal insufficiency and acute renal failure. The chronic component is from the TTTS and will never improve. The acute component is related to the infection and hopefully improves through the elimination of the infection. The acute issues are what concern the doctors the most. If they do not reverse, the doctors have discussed dialysis on her. They have never done peritoneal dialysis on a baby this small before and are unsure of the outcome. The goal now is to get her bigger and get some of her other issues under control(infection, lungs, jaundice, seizures, and edema). They will be monitoring her kidney function closely and manipulating her meds, fluid, and diet to minimize the impact on her kidneys.

On a lighter side, Ashleigh is doing well. She grew some, breast fed twice and pooped on momma.