Faith's seizures have been controlled by the Phenylbarbital(PB). They have not observed any seizures in the last day or so. The doctors still do not know why they developed and they may never know. We will have to wait until she starts outgrowing her PB dose to determine if the antibiotics have cured the underlying problem.
Early this morning they tried to ween her off some of her blood pressure drugs, but her BP went too low and her urine output decrease some. They have since increased them to the previous level. She has had her O2 levels drop a few times today so they had to increase her ventilator settings to help her breath. Comparative to the weekend she has had a relatively good day and a half. She has atleast been getting more rest then she was.
Ashleigh pulled her intubation tube out last night for the second time(stinker!). They tried to leave her on the CPAP(nasal ventilator) to see if she could handle it. She wasn't ready so they reintibated her. While she was on the CPAP we did get to hear her cry. I was never so happy to hear a baby cry. In the grand scheme she is doing well.
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2 comments:
These girls are really testing those doctors! I can't believe the fight they both exhibit so young.
Good thoughts and prayers!
Mere
Michele,
The pic of you holding Ashleigh is just beautiful! I know how good that felt to you (and to her) now if Faith would get on the same page that her sister is on. Matt also went through the seizure thing as a premie and went home on several meds for them but within his first year he out grew them. The docs just called them "premie seizures". Hopefully that is all it will be for Faith also. Keep up the good work. You all are doing great!
Love you,
Dawn
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