The final results for Faith's EEG were given to us on Saturday. The report shows diffuse encephalopathy. Without getting into the details it confirms injury to the brain. The extent of the damage will likely not be known for weeks. She requires an MRI, but is just no stable enough yet to get one. This was a heart wrenching surprise as we were told the initial results looked ok. She also started to seize again on Saturday. She is now on an additional drug Keppra. We also do not know the cause of the injury or seizures. The child neuro specialist did state that the young brain is hard to diagnose on EEG and is also very resilient.
Ashleigh is still having uneventful good days. She weighed 3 lbs 1 oz today. She really looks to be getting bigger.
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I know that no words are going to be the right words, but to say nothing wouldn't help either. I keep praying that Faith will have a few uneventful days, but so far that doesn't seem to be the case.
We are certainly continuing to pray for Faith (and Ashleigh and Parker, of course). Love you both and prayers that you will continue to be strong in this difficult times. I just know that some good news must come your way.
Mere, Gerrit and Anneka
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