Update Oct. 29th

Last week was not the best week for Faith. Monday the Dr. put her on the regular nasal cannula again so we thought things were improving. On Wednesday however we found out due to her rickets (brittle bones) she has 2 fractures in her left leg. She is now wearing a harness to immobilize her legs and allow the breaks to heal. She also had a slight set back with her breathing. The Dr. put her back on CPAP on Saturday due to bad blood gases. She had too much C02. By Saturday night her stomach started to bloat and Sunday morning it was much bigger. She had too much air getting in to her gut so they stopped her feeds, put her back on the regular nasal cannula at 7 liters of flow and 80% O2. She is now down to 6 liters 35% O2. and back on full feeds of 35cc's. They are only weighing her once a week to allow her to heal. We are able to hold her however it is very difficult. Faith also had to have blood as her hermaticrit was low. Her eyes are improving since the surgery and her color is getting better! Small steps in the right direction.

Ashleigh is still doing well. Her eyes are improving as well and so far will not need glasses or surgery. She is getting bigger by the day. Her next Dr. appointment is in November so it will be interesting to see how much weight she has put on since we aren't getting her weighed every week now. She was discharged from the home nurse last week! Her apnea clinic appointment in November 20th. She hasn't had anymore episodes so keep your fingers crossed!

I know you are all dying for pictures. I broke the camera over the weekend. I will do what I can today while Parker is sleeping. I'm finding I only get about 1/2 to myself to get anything done without interruption.

Love,
Michelle